Talking with your family

You don’t have to navigate the road ahead alone

Whether you're just beginning with an ATTR amyloidosis diagnosis or have been living with it for some time, it’s always important to know and remember that a strong support network of friends, family, and healthcare providers can help you every step of the way.

Talking With Your Family And Loved Ones About ATTR 
AmyloidosisTalking With Your Family And Loved Ones About ATTR 
Amyloidosis

Talking with your family and loved ones about ATTR amyloidosis

There is no right or wrong way to talk to your family about ATTR amyloidosis, but planning for the conversation beforehand may help you explain the condition and answer questions about it more confidently. Here are some ways that you can prepare for the conversation:

  • Choose a comfortable environment where you and your family members can talk openly
  • Come prepared with information that will help explain ATTR amyloidosis, including materials from this site. This can help your family members better understand the condition and how it may affect you
  • Be ready to explain your symptoms. It's important to explain both your current symptoms and the possible symptoms that may affect you in the future
  • Encourage questions. Even close family members may be hesitant to ask questions; encouraging questions can help drive an open, honest conversation about the road ahead

Hereditary ATTR amyloidosis is a form of ATTR that is inherited from family members.

If you’ve been diagnosed with ATTR amyloidosis, knowing if your condition is hereditary is an important next step. Genetic testing can help confirm your diagnosis and provide important information for you and your doctors.

The [Program name] offers no-cost, confidential genetic testing and counseling to qualified patients.

Learn more about genetic testing