Talking with your healthcare team
Because ATTR amyloidosis can affect many parts of the body, you may see several different specialists, such as neurologists, gastroenterologists, and cardiologists. Open communication will be a vital part of your relationship with your healthcare team, and ongoing dialogue will be an important part of living with ATTR amyloidosis. Be prepared to update your healthcare team on how you are feeling and to discuss your next steps and treatment options.
Get the most out of visits with your doctor
Tips for talking to your doctor:
- Prepare a list of questions before each visit
- Take notes during visits to help you remember your doctor’s answers to your questions. If possible, bring another person, such as a loved one, to help you
- Keep a folder with all your medical papers and test results, and bring it to each visit
- Know who to contact for follow-up questions
Tracking your symptoms is key—before and after diagnosis
Symptoms of ATTR amyloidosis vary significantly from person to person and can change over time. People with the condition may also experience a wide range of symptoms that seem unrelated to each other. Keeping detailed notes of your past and present symptoms can help you and your doctor track how your disease is progressing.
.svg)
